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What
is it like when a
person's home becomes
their
prison? What must it
be
like to feel trapped in a place that should be a
person's sanctuary? And the next logical question
becomes, what can be
done
to change this?
Charles "Chuck" Miller
knows
the answers to all
of
these questions through
his
own personal
experience. Mr. Miller
was
born with cerebral
palsy, was able to lead a
productive life, got
married, had two sons and
worked at Pennsylvania
Power and Light for 23 years. They have lived
comfortably in a single family
two-story farm-type house in
Duboistown in Lycoming County. However,
when Mr. Miller was in his mid-forties
things started to change. He began
falling a lot and his doctor
recommended that he go to a specialist
in Rochester, New York for evaluation and diagnosis. At that time
approximately two years ago, Mr. Miller found out
that he had congenital spinal stenosis causing
neuropathic quadriparesis,
causing decreased use of
his limbs. Mr. Miller had
surgery to prevent further damage to
his spinal cord and tried physical therapy
which was not effective for
him.
Although Mr. Miller has
limited mobility, he has
been managing to get around, although
it has been a struggle. He recently got a big, jazzy brand power chair and the
Lion's Club funded a lift for the family van.
He did mention that he has had the wheelchair for about six
months and half of that time it has
been in the shop for service. This type of
living has been a struggle for him and
his wife. Although he is able to
transfer out of his wheelchair and step into the shower on his own, his
house is not accessible and he faces barriers everyday.
The
Center for Independent
Living of North Central
Pennsylvania (CILNCP) is an agency
that advances the rights of persons with disabilities through the elimination of
barriers that people with disabilities
experience. Mr. Miller has been
receiving services from CILNCP and this is
where he met Bonnie Ludwig. Ms. Ludwig, currently the Housing Advocacy
Coordinator with the Self-Determination Housing Project of Pennsylvania, used to
be the Housing Program Manager at CILNCP. She learned about his living arrangement and
suggested that Mr. Miller look into some home
modifications in his house so that his home would be more accessible,
therefore improving the quality of his life
by allowing him to be more
independent.
There were no grants
available so Ms. Ludwig recommended that Mr. Miller get in touch with the
Pennsylvania Assistive
Technology Foundation (PATF), a
non-profit agency that provides low-interest loans for home modifications. In
order to apply for the loan Mr. Miller had to
state the type of work he wanted done as
well as submit
an estimate form the contractor. Ms.
Miller was able to recommend a contractor to Mr. Miller who could help him with
this information, and then Mr. Miller got in
touch with PATE. Mr. Miller was
a perfect candidate for
a loan.
The lending institution that
PATF works with is Sovereign Bank. Usually
the loans are processed fairly quickly, but because this
was the first loan in this particular geographic area, there was an issue
with the location being in a flood
plain. The process took a little longer than usual, but on September
25th, 2005 Mr. Miller was
able to get a $25,000 loan with a 4 percent
interest rate. Mr. Miller retained Centura Builders, the
contractor recommended by Ms. Ludwig, whose
next opening to do the
work was in a month. The contractor
officially began home modifications on October
31st,
2005.
Mr. Miller and the contractors developed plans for several
different modifications. They first installed a 40 foot ramp off of the back
porch which involved leveling the patio approximately 7 inches. In addition, the
patio door was widened to 36 inches, making it easier for Mr.
Miller to get out of the door in his
wheelchair. On the first floor of Mr. Miller's home, there are
two living areas. One was used as a
playroom for his sons who are both now
grown. The playroom is being converted into a bedroom and plans to modify the
downstairs bathroom will make the
first floor
completely accessible. The bathroom will include an accessible shower, a wall
hung sink and a set-in commode. When
asked about the quality of the work being
done, Mr. Miller commented, "They do very good work and really take
their time with what they
are doing."
In addition, renovations are
being made in the kitchen.
A dishwasher and garbage disposal
were put in, and the kitchen floor is being leveled and raised and new linoleum
will be installed. Purchasing new counters
and cupboards was more expensive than
what Mr. Miller could afford, and so he and the contractor came up with
the creative alternative of raising the kitchen floor. This will
allow Mr. Miller to have better
access to the existing counters and cupboards.
Mr.
Miller is very pleased with the renovations,
stating, "We would not have
been able to do any of these modifications if it
hadn't been for the loan from PATF.
Everything for me and my wife has
improved, getting around is not as much of a struggle."
Prior to the home
modifications, another factor helped to improve the quality of Mr. Miller's
life. In August of 2005, Mr. Miller
"adopted" Andy, a golden retriever service dog from Eagle Wings, an agency that
trains selected shelter dogs to assist individuals. Eagles'
Wings Service Dogs assist
individuals with picking up
objects, carrying objects for their
partner, and helping individuals with more
specific needs such as turning light switches and
.elevator buttons on and off, and
retrieving portable phones. The dogs not only
assist with physical activities but also give confidence and
companionship to their human partners, permitting
the individual to enter into
community activities with a sense of
independence. Mr. Miller had three weeks of training with Andy at Eagle Wings. Andy
can open doors and the refrigerator, can
take off his shoes and pants, and carries a variety of articles such as
the portable phone and his water bottle. Mr. Miller
noted, "Andy has been great companionship for me. I like to
go swimming at the Y at night and he has been very
helpful when I use public
transportation -
in fact I seem to get better service
everywhere now that I have
Andy!" |